Friday, July 10, 2015

A Rare Portrait

A few months back I was asked if I would like to participate in a special art exhibit.  I would paint, and donate, a portrait of a child with a rare genetic disease.  As you might suspect, I got more than I gave.  When I dropped off the painting, the coordinator of the exhibit, Patricia, acknowledge the challenge of painting accurate portraits.  I then found out she had two children with genetic disorders.  The comparison of a lifetime of challenges vs. a few hours creating a portrait are such opposite extremes.  This will be the second exhibit and the number of artist who volunteered have tripled, some asking to do additional portraits.  The foundation is called the Rare Disease United Foundation, but Patricia's goal is to make the world know these disorders are not really rare.  There are over 7000 different genetic disorders affecting 30 million Americans; so there are lots of opportunities for future portraits.

Please check out my beautiful model Brenna's website, who has Harlequin Ichthyosis
 http://www.blessedbybrenna.com/
And the website for the first wonderful exhibit.
http://rarediseaseunited.org/programs/beyond-diagnosis-art-exhibit
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